Providing you with detailed information about all neurological disorders is beyond the scope of this web site. Instead, I have compiled a list of useful website links that you can refer to for accurate information. When available, sites in Arabic are also listed. Periodically new information will be added for each topic specifically.
These sites have been compiled from several sources including:
- The American Academy of Neurology Patient Information Guide
- The US Department of Health & Human Services Booklet of Neurological Disorders – Voluntary Health Agencies & Other Patient Resources
- General Search of the World Wide Web
The following sites provide information about various Neurological Disorders:
Stories about persons living with various Neurological disorders. www.thebrainmatters.org National Institute of Neurological Disorders & Stroke. www.ninds.nih.gov The American Academy of Neurology. www.aan.com
The following sites address caregiver issues:
National Family Caregivers Association. www.nfcacares.org Family Caregiver Alliance. www.caregiver.org Well Spouse Foundation. www.wellspouse.org C-Mac Informational Services/Caregiver News. www.caregivernews.org
Other Resources:
Brave Kids. www.bravekids.org Friends’ Health Connection. www.friendshealthconnection.org MUMS National Parent-to-Parent Network. www.netnet.net/mums
National Council on Patient Information & Education.
National Organization for Rare Disorders. www.rarediseases.org
Guide to Individual Neurological Disorders
Acoustic Neuroma Acoustic Neuroma Association www.ANAUSA.org International Radiosurgery Support Association www.irsa.org
Aneurysm Brain Aneurysm Foundation www.bafound.org American Stroke Association www.strokeassociation.org American Association of Neurological Surgeons www.aans.org
Angelman Syndrome Angelman Syndrome Foundation www.angelman.org
Aphasia National Aphasia Association www.aphasia.org Aphasia Hope Foundation www.aphasiahope.org American Speech-Language-Hearing Association www.asha.org
Ataxia National Ataxia Foundation www.ataxia.org Friedreich’s Ataxia Research Alliance www.frda.org Ataxia Telangiectasia Children’s Project www.atcp.org Ataxia Telangiectasia Medical Research Foundation www.gspartners.com/at Ataxia Telangiectasia Project www.atproject.org Muscular Dystrophy Association www.mdausa.org Attention Deficit & Hyperactivity Disorder (ADHD) Attention Deficit Disorder Association www.add.org Children & Adults with ADHD www.chadd.org
Back Pain National Institute of Arthritis & Musculoskeletal & Skin Diseases Information Clearinghouse www.niams.nih.gov American Academy of Physical Medicine & Rehabilitation www.aapmr.org American Chiropractic Association www.amerchiro.org American Academy of Family Physicians www.aafp.org American Association of Neurological Surgeons www.aans.org American Academy of Orthopedic Surgeons www.aaos.org
Behcet’s Disease American Behcet’s Disease Association www.behcets.com
Belpharospasm Benign Essential Blepharospasm Research Foundation www.blepharospasm.org Dystonia Medical Research Foundation www.dystonia-foundation.org Worldwide Education & Awareness for Movement Disorders www.wemove.org
Brain Injury Brain Injury Association www.biausa.org Brain Trauma Foundation www.braintrauma.org Coma Recovery Association www.comarecovery.org Head Injury Hotline (The Phoenix Project) www.headinjury.com Perspectives Network www.tbi.org
Brain Tumor American Brain Tumor Association www.abta.org Brain Tumor society www.tbts.org National Brain Tumor Foundation www.braintumor.org Pediatric Brain Tumor Foundation www.pbtfus.org Children’s Brain Tumor Foundation www.cbtf.org Childhood Brain Tumor Foundation www.childhoodbraintumor.org Musella Foundation for Brain Tumor Research & Information www.virtualtrials.com Pituitary Network Association www.pituitary.org International Radiosurgery Support Association www.irsa.org
Carpal Tunnel Syndrome American Academy of Orthopedic Surgeons www.aaos.org Association for Repetitive Motion Syndromes www.certifiedpst.com/arms/ Work Related Musculoskeletal Disorders Organization www.wmsd.org Centers for Disease Control and Prevention National Institute for Occupational Safety & Health www.cdc.gov/niosh National Institute of Arthritis & Musculoskeletal & Skin Diseases www.nih.gov/niams/ US Department of Labor Occupational Safety & Health Administration (OSHA) www.osha.gov National Chronic Pain Outreach Association www.chronicpain.org American Chronic Pain Association. www.theacpa.org
Charcot-Marie-Tooth Disease Charcot-Marie-Tooth International www.cmtint.org Charcot-Marie-Tooth Association www.charcot-marie-tooth.org The Neuropathy Association www.neuropathy.org Muscular Dystrophy Association www.mdausa.org
Coma Coma Recovery Association www.comarecovery.org
Dizziness & Balance Ear Foundation/Meniere’s Network www.earfoundation.org Vestibular Disorders Association www.vestibular.org
Dyslexia International Dyslexia Society www.interdys.org
Dystonia Dystonia Medical Research Foundation www.dystonia-foundation.org National Spasmodic Torticollis Association www.torticollis.org Spasmodic Torticollis Dystonia/ST Dystonia www.spasmodictorticollis.org Benign Essential Blepharospasm Research Foundation www.blepharospasm.org National Spasmodic Dysphonia Association www.dysphonia.org/nsda Worldwide Education & Awareness for Movement Disorders www.wemove.org American Speech-Language-Hearing Association www.asha.org
Erb’s Palsy United Brachial Plexus Network www.ubpn.org Brachial Plexus Palsy Foundation www.membrane.com/bpp/
Hemifacial Spasm Worldwide Education & Awareness for Movement Disorders www.wemove.org
Huntington’s Disease Huntington’s Disease Society of America www.hdsa.org
Hydrocephalus Hydrocephalus Association www.hydroassoc.org National Hydrocephalus Foundation www.nhfonline.org
Learning Disabilities Learning Disabilities Association of America www.ldaamerica.org National Center for Learning Disabilities www.ld.org
Meniere’s Disease Ear Foundation/Meniere’s Network www.earfoundation.org Vestibular Disorders Association www.vestibular.org
Meningitis Meningitis Foundation of America www.musa.org National Meningitis Foundation www.nmaus.org National Institute of Allergy & Infectious Diseases (NIAID) www.niaid.nih.gov
Moebius Syndrome Moebius Syndrome Foundation www.moebiussyndrome.com
Muscular Dystrophy Fascioscapulohumeral Dystrophy Society www.fshsociety.org Muscular Dystrophy Association www.mdausa.org Muscular Dystrophy Family foundation www.mdff.org Parent Project Muscular Dystrophy www.parentprojectmd.org
Myoclonus Myoclonus Research Foundation www.myoclonus.com Opsoclonus Myoclonus Support Network www.geocities.com/opso-myoclonus Worldwide Education & Awareness for Movement Disorders www.wemove.org
Myositis The Myositis Association www.myositis.org Muscular Dystrophy Association www.mdausa.org American Autoimmune Related Disease Association www.aarda.org Arthritis Foundation www.arthritis.org
Myotonic Dystrophy International Myotonic Dystrophy Association www.myotonicdystrophy.org Muscular Dystrophy Association www.mdausa.org Muscular Dystrophy Family foundation www.mdff.org Parent Project Muscular Dystrophy www.parentprojectmd.org
Narcolepsy Narcolepsy Network, Inc. www.narcolepsynetwork.org National Sleep Foundation www.sleepfoundation.org American Sleep Apnea Association www.sleepapnea.org
Neurofibromatosis Neurofibromatosis, Inc. www.nfinc.org National Neurofibromatosis Foundation www.nf.org March of Dimes Birth Defects Foundation www.marchofdimes.com Acoustic Neuroma Association www.ANAUSA.org
Paralysis National Spinal Cord Injury Association www.spinalcord.org Spinal Cord Society www.members.aol.com/scsweb Christopher Reeve Paralysis Foundation www.christopherreeve.org Miami Project to Cure Paralysis / The Buoniconti Fund www.miamiproject.org Daniel Heumann Fund for Spinal Cord Research www.heumannfund.org Geoffrey Lance Foundation for Spinal Cord Injury Research & Support www.geofflance.com
Porphyria American Porphyria Foundation www.enterprise.net/apf
Polio / Postpolio Syndrome Post-Polio Health International www.post-polio.org March of Dimes Birth Defects Foundation www.marchofdimes.com Polio Connection of America www.geocities.com/w1066w
Progressive Supranuclear Palsy Society for Progressive Supranuclear Palsy www.psp.org Worldwide Education & Awareness for Movement Disorders www.wemove.org
Pseudotumor Cerebrii Pseudotumor Cerebri Support Network www.pseudotumorcerebri.com Intracranial Hypertension Syndrome www.ihrfoundation.org
Reflex Sympathetic Dystrophy American RSD (CRPS) Hope Group www.rsdhope.org RSDS (CRPS) Association www.rsds.org American Chronic Pain Association www.theacpa.org American Pain Foundation www.painfoundation.org National Chronic Pain Outreach Association www.chronicpain.org National Foundation for the Treatment of Pain www.paincare.org
Spinal Muscular Atrophy Spinal Muscular Atrophy Foundation www.smafoundation.org Families of Spinal Muscular Atrophy www.fsma.org Fight SMA/Andrew’s Buddies www.fightsma.com Muscular Dystrophy Association www.mdausa.org
Syringomyelia American Syringomyelia Alliance Project www.asap.org
Tinnitus American Tinnitus Association www.ata.org American Academy of Otolaryngology – Head & Neck Surgery www.entnet.org
Tourette Syndrome & Tics Tourette Syndrome Association, Inc. www.tsa.usa.org Tourette Syndrome Foundation of Canada www.tourette.ca World Wide Education & Awareness for Movement Disorders www.wemove.org
Tremor International Essential Tremor Foundation www.essentialtremor.org Tremor Action Network www.tremoraction.org National Ataxia Foundation www.ataxia.org World Wide Education & Awareness for Movement Disorders www.wemove.org
Tuberous Sclerosis Tuberous Sclerosis Alliance www.tsalliance.org
Wilson’s Disease Wilson’s Disease Association International www.wilsonsdisease.org National Center for the Study of Wilson’s Disease www.wilsonsdiseasecnter.org American Liver Foundation www.liverfoundation.org
Autism/Asperger's Syndrome (Autistic Spectrum Disorder/Pervasive Developmental Delay)
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