ALS is a progressive neurodegenerative disorder that results from the death of motor neurons. Patients develop weakness affecting voluntary muscles eventually affecting muscles of respiration
Providing you with detailed information about all neurological disorders is beyond the scope of this web site. Instead, I have compiled a list of useful website links that you can refer to for accurate information. When available, sites in Arabic are also listed. Periodically new information will be added for each topic specifically.
These sites have been compiled from several sources including:
- The American Academy of Neurology Patient Information Guide
- The US Department of Health & Human Services Booklet of Neurological Disorders – Voluntary Health Agencies & Other Patient Resources
- General Search of the World Wide Web
Amyotrophic Lateral Sclerosis:
The Amyotrophic Lateral Sclerosis Association. www.alsa.org
ALS Therapy Development Foundation. www.als.net
Les Turner ALS Foundation. www.lesturnerals.org
Muscular Dystrophy Association. www.mdausa.org
Project ALS. www.projectals.org
The following sites provide information about various Neurological Disorders:
Stories about persons living with various Neurological disorders. www.thebrainmatters.org
National Institute of Neurological Disorders & Stroke. www.ninds.nih.gov
The American Academy of Neurology. www.aan.com
The following sites address caregiver issues:
National Family Caregivers Association. www.nfcacares.org
Family Caregiver Alliance. www.caregiver.org
Well Spouse Foundation. www.wellspouse.org
C-Mac Informational Services/Caregiver News. www.caregivernews.org
Other Resources:
Brave Kids. www.bravekids.org
Friends’ Health Connection. www.friendshealthconnection.org
MUMS National Parent-to-Parent Network. www.netnet.net/mums
National Council on Patient Information & Education. www.talkaboutrx.org.
www.bemedwise.org
National Organization for Rare Disorders. www.rarediseases.org
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